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New PMR patient, wondering if mornings will become pain free someday

Polymyalgia Rheumatica (PMR) | Last Active: Jun 1 11:10am | Replies (120)
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@lizward46

Hi, Just to add to the confusion. When I was diagnosed in May 2023 I started with 20mg of prednisone. After a few days I reported to my rheumatologist that I wasn’t experiencing the “miracle pain relief” that she had said would happen. She then upped my prednisone to 30mg and BINGO I was pain free. I have continued to be without pain during several months of tapering. Am now down to 8mg. No side effects so far from prednisone (that I can observe). Also taking calcium, vit D, vit K, Pepcid, and fozamax, plustrying to keep to an anti inflammatory diet. My goal is to get off the prednisone without any flares. Right now I am tapering 1mg per month so it will be some time in 2024 that I will reach this goal. You mentioned that you will be seeing a rheumatologist soon. Hopefully you can get answers to all your concerns. Good Luck, be patient. Liz Ward

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sunshine4u | @sunshine4u | Sep 15, 2023

How long were you on 30 mg and how many months did it take for you to get down to 8mg? How did you taper it and when you tapered it, how long did you take the lower dose before you lowered it again? Sorry for all the questions and I know everyone is different but I would sure like to be able to get by with a lesser dose also.
The other question I have is when the pain intensifies, is it doing more damage to the joints?

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