My wife is very stoic about her situation, and has, to a degree, assumed the role of caregiver for her older roommate, who expresses herself about being abused by staff, being fed things which upset her stomach, not getting enough assistance, wanting to go home, and so on. I think this occupies most of my wife's time, but she is fond of her roommate. I don't think she engages with other residents very much or participates in many of the facility's activities. Her own level of cognitive impairment is mild, and I don't see a change since she entered the facility two months ago. She lives for my visits and is reluctant for me to leave. I tend to visit every other day and stay for about two hours. Her personal hygiene is not very good. I know the residents have nurse-supervised showers twice weekly, but that really isn't frequent enough, and I don't think she brushes her teeth adequately. She also wears the same clothes every day, although I think they are laundered. This is not new behavior, as she was lax with her dental and physical hygiene at home, and clothing changes. She has always had a habit of picking at her fingernails, and over the last several years has picked them down to where there's very little nail left. Our conversations mostly consist of me telling her what I've been doing, and she remembers to ask me questions about those activities. At home, she was so anxious about me going anywhere that I stopped going out, and this was probably the driving factor for me to place her in a memory care facility. She would sleep a lot during the day, and could no longer drive or operate any electronics or cooking appliances. I don't want to be her caregiver, but it's heartbreaking for me to witness her living in conditions that are several steps down from those at home. On the other hand, she doesn't complain about them. Her facility is a "good" environment, relatively speaking, but I feel guilty about her being in it, although my freedom would be sharply limited if she were at home, even with a home healthcare worker, which we had. So it's a conundrum.
Hello Fleetwood,
I think it is one of the most difficult decisions to place your loved one in a care facility. It sounds like you did the right thing. As a nurse (now retired this year) I have seen many situations where a caregiver gives more than they can only to find themselves in their own health situation, usually caused by burn-out. What you did is called self-care and it takes courage to realize this.
Regarding the difference in what you did at home and what her care is now is also difficult. Have you had a meeting with the care facilities where you can express this and hear their side of the situation? Be open-minded to their explanations and explore different opportunities. You may want to take another family member or trusted friend with you to get more perspective.
If their answers include lack of available staff, could you financially hire a PSW (personal support worker) or equivalent for her care. As for her oral hygiene and change of clothes, I would ask staff to supervise and assist with this.
Remember that if it doesn't bother your wife that you may have to lower your expectations for her care but there must be an identified expectations by the care facilities. I truly believe that communication may resolve this for you. Also consider seeing a social worker or counselor to help you navigate through this. In Canada, this is provided by the Alzheimer Society but not sure if this is the same where you live.
Wishing you well,