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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)

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@peggyn

John I have been to the protocol site many times and I do take some of the supplements . Did you go full and do everything, all of them ,and as many as it daily said?? I have not ordered the hemp seed oil. How long did you do the full protocol? Do you still take the full amount everyday??

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Replies to "John I have been to the protocol site many times and I do take some of..."

@peggyn @jjwest -- I have been a member of the closed Facebook group Solutions to Peripheral Neuropathy Pain & Discomfort since August 2016. I have been on the full protocol since Sept 2016. The purpose of the group is to offer a natural alternative to all of the pain drugs that are used to treat neuropathy -- It is not a cure for neuropathy - there is no cure.

Facebook: http://www.facebook.com/groups/spnpd.
Website: http://solutions2pnpd.com/

I have no medical training or background. For me the choice is simple since I have no pain with my idiopathic small fiber peripheral neuropathy. The medical community has no drugs available that address numbness that is the major symptom of my neuropathy. The drugs offered that treat the pain do so by blocking the pain signals in the brain - not a coincidence that one of the long term side effects of the drugs like gabapentin and lyrica is foggy brain and they are difficult to taper off. Maybe I would feel different if I had pain. I know how great the prednisone makes me feel when I have an episode of polymyalgia rheumatica (PMR). What the protocol of supplements does is provide an alternative treatment to replace the drugs after you are on the full protocol and the effects of taking the protocol start working (no pain). You can't pick and choose which ones to take. They all work together to promote nerve health.

Another thing to mention is that diet is very important. Both sugar and alcohol are worse for you when you have neuropathy. I still struggle a little with the sweets but I watch what I eat and try to minimize sugar intake.

My PN story on Connect: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985