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Anyone have cavitary MAC?

MAC & Bronchiectasis | Last Active: Sep 12, 2023 | Replies (67)

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@mokie

I am glad that it is working for you, and you're managing the regimen. Thanks so much for taking the time with a newbie. I am afraid of inhaling the stuff because of bronchiectasis, which makes the bronchioles not expand and contract as they should. My specialist ordered arikayce without discussing the procedure or anything about it. Another doctor strongly urged me to get the arikayce injections. Not sure always what the best course is. Arikayce reps are phoning me all the time.

Mokie

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Replies to "I am glad that it is working for you, and you're managing the regimen. Thanks so..."

I did Amikacin IV for 12 weeks long before Arikayce inhaled. Both are tough, if you could do the inhaled first it might be better if you can tolerate it. You can stop if the side effects are bad or they can alter the dosage/days

I started the inhaled Amikacin in June and in the beginning it caused me to cough during the treatment. I mix it with Sodium Chloride (per doctors orders) so it isn't as harsh. After a week that all went away. I have Zero side effects and hope the Amakacin is helping close my cavity. I certainly had to give it a try.