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rabbit10 (@rabbit10)

Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 1 hour ago | Replies (2069)

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@johnbishop

Hello @ahendershot, welcome to Connect. I also have idiopathic small fiber peripheral neuropathy but have had it 20+ years. Mine is mostly numbness in my feet and just above the ankles. This past winter while clearing snow I stayed out a little longer than I should have and even though I had good gloves on my hands got very cold and as a result it feels like I have the start of neuropathy in the tips of a few fingers on my left hand or it's a result of frostbite.

Do you have pain with your neuropathy? I don't have any pain from it but I take supplements which has slowed the progression of the neuropathy. I posted what helps me earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
John

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Replies to "Hello @ahendershot, welcome to Connect. I also have idiopathic small fiber peripheral neuropathy but have had..."

Hi John,
I do have pain from my foot and my hand that is non-stop. I feel pinching, stabbing, burning, “frostbite”, and numbness that causes a deep cramp to ride up my leg and arm. I’m ramping up my dose of gabapentin but it has not helped a lot yet. I’m currently at 900mg a day. My anesthetic creme still works ok on my foot, but I still have trouble sleeping because it is not as effective on my hand.
Thanks for the additional information on your management of neuropathy. I’ll be sure to go through it.
Andrew