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Relationships: How do you form and maintain them when ill?
Just Want to Talk | Last Active: Sep 14, 2023 | Replies (76)Comment receiving replies
Have you identified anything that helps with your self esteem in relation to this?
It is sad when people value you for one particular thing about you and not for who you are as a person, because they crumble or leave the second that one thing changes. Those are not your people.
Some days/periods are too difficult to be the best version of yourself. Sometimes, simply existing is all we can do, and that's okay.
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@buzz23 Tabitha, I have learned, the hard way like so many of us here, that I need to honor myself, and not "just go along with it" because that is what someone else wants. Nothing worse than how we can beat ourselves up, in my book. Like you, I am very much an introvert, and sometimes [okay, often!] miss the social cues, and that is from being an introvert and also on the autism spectrum with Aspergers Syndrome.
Having lupus, plus other health concerns to deal with on a daily basis, has not been easy for others to understand that some days are better than others, and what my energy level will be is a toss up. Once a week I take 12 mg of dexamethasone as part of my cancer treatment. I know that day, towards the afternoon, and into the next day, my energy level will be "up" so I plan for activities that might not get accomplished otherwise. A group of "friends" eventually excluded me, because I had to back out of plans. Now I have others in place who accept me for what I can do, when I can do it, and we are finding out that I am able to actually do more because they support me! Isn't that cool.
Ginger