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To start or not to start the antibiotics?
MAC & Bronchiectasis | Last Active: Sep 10, 2023 | Replies (59)Comment receiving replies
My original pulmonologist didn’t do anything for me either.. he just told me I have bronchiectasis and to schedule another CT in a year. Something was nagging me to get a second opinion so I found a wonderful pulmonologist who felt I should have a bronchoscopy and that is when they found MAC. Yes, we must take control of our own health and listen to our gut. I’m so glad I found this group too, I had no idea airway clearance was important. I have been doing it twice a day for about 20 minutes. I haven’t coughed up any sputum though. My doctor started me with 3%, maybe I need 7%. I’ll ask her after I’m done with the box of 3%.
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My pulmonologist put me on 3% three years ago when I was first diagnosed. It was thru this site that I learned about 7% - a huge difference!!!!! As soon as I am done with nebulizing I begin to cough up clobs of mucous. I use 7% in the morning and 3% in the evening as coughing after 7% interferes with my sleep. I asked my pulmonologist about 7% and he said he had no problem with ordering it. Saline has no medication in it so insurance and Medicare will not pay for it. It is relatively cheap and my daughter who has been an RN for 30+ years told me that no prescription is required. MAC is rare and I 100% agree that no pulmonologist is an expert and they would learn a lot if they listened to those of us who have lived with it for some time.