Long term side effects of Evenity

Posted by polite @polite, Aug 31, 2023

My Bone Specialist Prescribed and My Insurance Co. approved Evenity. Would like more information on long term side effects and results; to help me decide on Evenity vs. Tymlos or Forteo. Many thanks in advance .
polite

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@whyme123

Has anyone who is reading this had side effects from the Evenity? My endocrinologist is recommending I get a Evenity for one year and then go to prolia after that. I was just diagnosed with osteoporosis and I’m very afraid to start the medicine after reading about the side effects. My T score was 2.6 and even though I’m on the osteoporosis level I feel that maybe I’m still borderline enough to be able to manage it with diet changes extensive walking and vitamins. There is a supplement called BoneUp that I have been taking since I received the diagnosis. I don’t know what it’s doing to my bones, but my fingernails are suddenly very hard instead of flimsy like they were before I started. What’s going on out there with side effects?

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I took the 12 shots of Evenity ending in July 2023. I am supposed to take Prolia twice per year. I don't know how that will go yet. It is my understanding that after you take Evenity, you need to take something else so that you don't lose the good that the Evenity has done. I get the first Prolia shot next week. After Evenity, my spine surgeon feels that my bones are better and he can now do surgery to fix my issues in my back.

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@dianestanley

I took the 12 shots of Evenity ending in July 2023. I am supposed to take Prolia twice per year. I don't know how that will go yet. It is my understanding that after you take Evenity, you need to take something else so that you don't lose the good that the Evenity has done. I get the first Prolia shot next week. After Evenity, my spine surgeon feels that my bones are better and he can now do surgery to fix my issues in my back.

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Thanks for sharing this

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@dianestanley

I took the 12 shots of Evenity, which ended in July of this year. I could not get surgery due to the Osteoporosis. Finally, my surgeon felt that my bones were as strong as they are going to get right now and will be doing my infusion surgery within the next two months. I still can't stand over four or five minutes since my injury. I had no heart problems when I had started Evenity. The only thing that I had noticed was waking up around 3:00 a.m. and it was hard to get back to sleep. I was tired the day that I got my shots. I hope this helps.

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Thank you so much

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@naturegirl5

@whyme123 My endocrinologist just prescribed Evenity for 12 months that will be followed by Zolendronate. I am in the osteopenia range (-1.5) after taking Fosomax for 5 years however since I stopped the Fosomax I had radiation therapy to the pelvic region for endometrial cancer. I experienced a fracture of the sacrum (lower spine) that was related to the radiation therapy.

I had no side effects from Fosomax. My mother had osteoporosis and was frail with many compression fractures and pain by the time she was my age (I’m now 71 years old). I do everything I can to maximize bone density and health so I I do not have the quality of life experience that my mother had. I did not hesitate on agreeing to start on Evenity. If there are side effects I’ll talk with my endocrinologist. I am doing everything I can with diet and exercise to optimize bone health and if Evenity prevents future fractures then that’s a huge bonus.

I think whether or not to take Evenity or any such medication is an individual decision a person must make given their risk factors and a conversation with their doctor. In retrospect, I wish I had seen an endocrinologist years ago when I was first diagnosed with osteoporosis. You are doing the right thing by consulting with a specialist (endocrinology) in bone health.

What do you think you will do? Will you talk with your doctor again?

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Thank you very much

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@naturegirl5

@whyme123 My endocrinologist just prescribed Evenity for 12 months that will be followed by Zolendronate. I am in the osteopenia range (-1.5) after taking Fosomax for 5 years however since I stopped the Fosomax I had radiation therapy to the pelvic region for endometrial cancer. I experienced a fracture of the sacrum (lower spine) that was related to the radiation therapy.

I had no side effects from Fosomax. My mother had osteoporosis and was frail with many compression fractures and pain by the time she was my age (I’m now 71 years old). I do everything I can to maximize bone density and health so I I do not have the quality of life experience that my mother had. I did not hesitate on agreeing to start on Evenity. If there are side effects I’ll talk with my endocrinologist. I am doing everything I can with diet and exercise to optimize bone health and if Evenity prevents future fractures then that’s a huge bonus.

I think whether or not to take Evenity or any such medication is an individual decision a person must make given their risk factors and a conversation with their doctor. In retrospect, I wish I had seen an endocrinologist years ago when I was first diagnosed with osteoporosis. You are doing the right thing by consulting with a specialist (endocrinology) in bone health.

What do you think you will do? Will you talk with your doctor again?

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I just started Evenity for a spine T score of -4.6. I am also 71 and in good shape. Have always worked out including weights. I walk and still jog. I also take no prescription medication. I wish I would of addressed this issue before it got this bad. I thought due to my healthy lifestyle I could fix this.
This was the med of choice from my endocrinologist. I started Evenity last month.

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@naturegirl5

@whyme123 My endocrinologist just prescribed Evenity for 12 months that will be followed by Zolendronate. I am in the osteopenia range (-1.5) after taking Fosomax for 5 years however since I stopped the Fosomax I had radiation therapy to the pelvic region for endometrial cancer. I experienced a fracture of the sacrum (lower spine) that was related to the radiation therapy.

I had no side effects from Fosomax. My mother had osteoporosis and was frail with many compression fractures and pain by the time she was my age (I’m now 71 years old). I do everything I can to maximize bone density and health so I I do not have the quality of life experience that my mother had. I did not hesitate on agreeing to start on Evenity. If there are side effects I’ll talk with my endocrinologist. I am doing everything I can with diet and exercise to optimize bone health and if Evenity prevents future fractures then that’s a huge bonus.

I think whether or not to take Evenity or any such medication is an individual decision a person must make given their risk factors and a conversation with their doctor. In retrospect, I wish I had seen an endocrinologist years ago when I was first diagnosed with osteoporosis. You are doing the right thing by consulting with a specialist (endocrinology) in bone health.

What do you think you will do? Will you talk with your doctor again?

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I’m going to wait until spring to decide and try to get a 2 nd opinion. I did not feel confident in my doctor’s answers. In the meantime I will continue to work on weight loss, improving diet, keep increasing my walking and weight bearing exercises and vitamin/ calcium intake.

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@dianestanley

I took the 12 shots of Evenity, which ended in July of this year. I could not get surgery due to the Osteoporosis. Finally, my surgeon felt that my bones were as strong as they are going to get right now and will be doing my infusion surgery within the next two months. I still can't stand over four or five minutes since my injury. I had no heart problems when I had started Evenity. The only thing that I had noticed was waking up around 3:00 a.m. and it was hard to get back to sleep. I was tired the day that I got my shots. I hope this helps.

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Thank you

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@kristie2

I just started Evenity for a spine T score of -4.6. I am also 71 and in good shape. Have always worked out including weights. I walk and still jog. I also take no prescription medication. I wish I would of addressed this issue before it got this bad. I thought due to my healthy lifestyle I could fix this.
This was the med of choice from my endocrinologist. I started Evenity last month.

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I had good results with Evenity. My body feels stronger. My spine number was -2.9 but I had a Burst Compression Fracture that did not heal. I am having back surgery next Month. I did this two years ago so I am happy to get the surgery done. There seem to be many people who live a healthy lifestyle getting Osteoporosis.

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@dianestanley

I had good results with Evenity. My body feels stronger. My spine number was -2.9 but I had a Burst Compression Fracture that did not heal. I am having back surgery next Month. I did this two years ago so I am happy to get the surgery done. There seem to be many people who live a healthy lifestyle getting Osteoporosis.

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Thanks for sharing

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