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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)

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@cbcbasket

Angie, I had base of tongue cancer in late 2014. I had Cisplatin chemo and radiation, which ended in mid-December 2014. By March 2015, I had developed numbness and tingling in my hands, which eventually spread pretty much to the whole upper body. Today, I still have the numbness and tingling in my hands and arms, and even into my shoulders and both ears, but fortunately no pain. I have no lower body symptoms at all. I have a significant loss of dexterity, worse on the left side. The right side did improve some over time.
I have had and tried all kinds of treatment from the very start: therapy, medications, tests, acupuncture, etc. It didn’t help. Nothing has helped.
I ran across an article on clinical trials by a company called WinSanTor. They are using a drug based on perinzepine, an existing medication, called WST-057. It is on a fast rack since perinzepine is already FDA approved. Check them out. It has been mentioned in threads on this site. It sounds promising but may not work for everyone.

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Replies to "Angie, I had base of tongue cancer in late 2014. I had Cisplatin chemo and radiation,..."

Hi, @cbcbasket - you might also be interested in the Connect Head & Neck Cancer group https://connect.mayoclinic.org/group/head-neck-cancer/

How are you managing the numbness and tingling while you wait for new medications to come on the market?