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DiscussionLesions on the brain and autoimmune disease
Autoimmune Diseases | Last Active: May 15 2:14pm | Replies (54)Comment receiving replies
Replies to "Hi there everyone..... my daughter has cyst's on her brain. I am wondering about this with..."
@leannestork I am so sorry about your daughter. I, too, had lesions on my brain, but they were not cysts. It was a newly diagnosed autoimmune disease. The doctors will do multiple biopsies which will tell them the source of the cysts.
The best thing you can do now is to support your daughter. She will need it. When you have more information, including the biopsies, you can meet with the doctors and discuss everything. I know how important it is to learn as much as you can, but you may have to go slow. I did find some articles, but they were mostly research and not good for you to read. Again, the doctors will be able to best answer your questions.
Is your daughter old enough to know/understand what’s going on? You want to be able to answer her questions truthfully and simply. Let’s see if other members have a similar experience. Will you stay in touch with me?