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Anyone out there diagnosed with Pudendal Neuralgia?

Chronic Pain | Last Active: Mar 23 9:31am | Replies (218)

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@hennykatz

I am so sorry about everything you went through. Hopefully this implant will help you.
I have been dealing with severe pelvic pain, starting in 2019. Had everything checked out, MRI, image guided shots, but no change. The pain is awful!
I had read about dorsal root ganglion implant and mentioned it to my pain doctor here at Mayo Clinic, Jacksonville. She told me that it was the wrong area for my pain.
I am dealing with bilateral pain of the pudendal nerve, take Gabapentin 3 times per day, but it does not really help.
Can you get me info of the manufacturer or who I should contact to try this treatment? As you know life is very difficult when dealing with this problem.
I hope you will continue to improve and wish you a lot of strength.

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Replies to "I am so sorry about everything you went through. Hopefully this implant will help you. I..."

My rectal pain started after a colorectal surgeon did an unneeded surgery. A simply Botox in sphincter to allow a supposed fissure heal. It left me in antagonizing pain. 24/7no way for relief. He wrote lies about me and I could not get a doctor or emergency room to help. I had the tests to show I never took opiates. If I could I would have. My medication doctor does urine test often an all patients. I have seen him for 9 years. It was also written in my med file I am bipolar. I have a letter stating I have never had anything but depression and anxiety from my pain and I am Celiac and have MTHFR. all has ruined my insides. Now the scar tissue he left doing what to my anal canal is growing and my anal canal is only 1/4 inch. The pain gets worse when I have to go potty. It is a hot knife stabbing inside me. My body has gone out of normal brain messages, called functional neurological disorder. No help for that. The network of nerves in the brain is sending the wrong messages. When the pain starts the body goes into shaking inside, arms and legs have lost ability to hold me up without help, my memory is gone and my speech is like a drunk disabled person. Ny life has been hell for 2.5 years. Doctors cannot fix the scar tissue, it causes the pain and that causes my body to go anything but balanced. I look a pathetic old lady, instead of the weight work and Pilates for 35 years. The 2 autoimmune diseases have caused my body to not be nourished. I just found out at 73 years how many problems I have in my body. I don’t see any future. My husband is not happy with my needs. I can move around in pain and off balance. I cannot go do anything but doctors offices who just send me to someone else. I don’t think I can live much longer. The colorectal doctor I saw says there is no surgery, medicines to help. I have been to Specialist PT but it causes pain. Then the doctors pull the therapy. I might try a stimulators implant, but the closure will still be there. One angry surgeon has killed me because with no evidence started to slowly cause my deterioration. He never did any lab tests. I never saw him before I went seeking help for constipation and general pelvic pain.