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I have pleural based lung issues. Is it cancer?

Lung Cancer | Last Active: Nov 14, 2023 | Replies (18)

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@lls8000

I do like your idea of a second opinion, or Merry's idea of a different doctor all together. If you aren't getting your questions answered, or you aren't feeling heard, then that isn't helpful. It can be so frustrating as the concerned patient. It sounds like it's been 4 months since your last CT. The pulmonologist seems to be taking a wait and see approach, and they haven't determined that the nodules are cancerous for sure, but you aren't risk free. I do agree that a year is a long time to wait for the next scan. If the nodules were showing no change scan after scan, then I personally may be more comfortable waiting a year, but not this early in the process. Everyone has a different comfort level.
Depending on where you live, it can sometimes be difficult to change health care locations. There are many great healthcare systems across the US. I'm not deterring you from trying to come to Mayo, I just don't want you to rule out another good facility that may be right in your back yard especially if this is cancer, and you need repeat visits. The National Cancer Institute maintains a list of centers: https://www.cancer.gov/research/infrastructure/cancer-centers/find. These are all very good, very well known, health care facilities.
This is the link to start a request for a Mayo Clinic appointment: http://mayocl.in/1mtmR63
The 'help' link in the upper right displays a phone number for the various location Appointment Coordinators. This team would be able to guide you through the process of becoming a Mayo patient.
Please keep us posted and let me know if you have other questions. The group may not have all the answers, but unfortunately most of us have felt that we've been left to advocate for ourselves through the process.

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Replies to "I do like your idea of a second opinion, or Merry's idea of a different doctor..."

Thank you so much, Lisa. I live in South Carolina so I have (all within 4+ hour drives) access to Mayo in Jacksonville, Duke Medical Center in Durham, NC and another cancer center in Augusta GA. Atlanta is a bit further out (but an easy flight). I'm not a worry-wart nor do I think the worse case scenario, but at 64/65 years old, I don't want to be left on someone's back burner. If my current doc doesn't want to do a repeat scan in February (6 months from the August scan), nor want to do a PET scan, I will definitely seek assistance elsewhere. That's why I'm here - to see what others in similar situations to mine have done, and what they recommend so I can make the best decision for my health. Thank you all for responding. I was feeling a bit alone out there....