Thanks for sharing this

Hi! I’m Kathryn and I’m going on 82 years old. About 23 years ago I was diagnosed with Panhypopituitarism which means I don’t have a pituitary gland anymore. It took me nearly ten years and seeing many doctors to get a firm diagnosis. By that time I had all sorts of physical problems, one of the worst is osteoporosis. My entire back is a real mess with rampant spinal stenosis and many broken discs. Several years ago I was talked into getting back surgery which was a huge error as the surgeon made a giant mistake. The head of the hospital got in touch with me and told me of the surgeon’s error and advised me to get an attorney. I did just that and won the case. It really doesn’t matter if one receives financial recompense if one has ended up with worse pain than was present before the surgery.

I have a very difficult time getting the amount of exercise that I feel would be beneficial given my physical condition. The residual effects one gets as a Panhypopituitary patient are many - one is losing a great deal of bone tissue which has caused me to lose three inches in height which won’t grow back. The level of pain I now live with stops me from living some sort of normal life. I take lots of replacement hormones and many other types of meds as the Panhypopituitarism is really tough on the body as a whole.

If there’s anyone reading this message who has also experienced Panhypopituitarism and is trying to develop some semblance of a normal life, please share your experiences. Thanks ever so much!