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To start or not to start the antibiotics?

MAC & Bronchiectasis | Last Active: Sep 10, 2023 | Replies (59)

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@healthybon

My original pulmonologist knew very very little about Mac when I was first diagnosed through a bronchoscopy cleaning.....
He told me not to nebulize, that it could make it worse. Good thing I had been reading this wonderful blog and learned about airway clearance and ignored his suggestions.......
That was many months ago and I have been nebulizing for months and months with 7% saline...I"m lucky that I can get quite a lot of clear sputum up each time. I can only imagine the accumulation of gunk that would have built up if I had listened to them. He should have googled it before giving me such dire directions......shame on him. WE MUST be our own advocate and investigate and ask questions...all pulmonaries are not experts on MAC....in fact most are not.

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Replies to "My original pulmonologist knew very very little about Mac when I was first diagnosed through a..."

My original pulmonologist didn’t do anything for me either.. he just told me I have bronchiectasis and to schedule another CT in a year. Something was nagging me to get a second opinion so I found a wonderful pulmonologist who felt I should have a bronchoscopy and that is when they found MAC. Yes, we must take control of our own health and listen to our gut. I’m so glad I found this group too, I had no idea airway clearance was important. I have been doing it twice a day for about 20 minutes. I haven’t coughed up any sputum though. My doctor started me with 3%, maybe I need 7%. I’ll ask her after I’m done with the box of 3%.