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Rare scalp Autoimmune disease… lichen planopilaris
Autoimmune Diseases | Last Active: Sep 5 7:44am | Replies (49)Comment receiving replies
@dancing1 You might also want to find a new rheumatologist. Your problem with LPP must be so frustrating and disheartening!
Here is the website for the genetic and rare diseases organization:
https://rarediseases.info.nih.gov/. And also NORD, national organization for rare disease:
https://rarediseases.org/
Both groups have info and patient resources for diseases like yours.
Will you give one of them a call? I’d love to hear that you’ve gotten some answers
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I just saw a new neurologist and he feels I have small fiber neuropathy. I am reading about it now even if my bloodwork biopsy and needle tests come back negative he feels I still have it and could be the reason for so many of my problems. Is there any good info on this. Thank you.