Anyone still have pancreas pain while taking Lanteotide?

I have metastasis liver net with unknown primary they believe it is in my gut
I did 3 Lanreotide injections they made me sooo sick I stopped and started Octreotide injections I was on for the first 3 months and then it slowly creeped up until I was sooo sick I had to stop
And they weren’t stopping my tumors from growing or new ones from presenting themselves
I am back to my old self now after I suffered for a year
Maybe your body can’t tolerate them as well
Good luck

So are you just not taking anything then?

Is your Oncologist team checking your ChromograninA with monthly blood tests? What are those result numbers?

They are doing bloodwork each month. I will have to inquire. I just had my first full dose injection about 2 weeks ago. I am not sick the whole time but still have some symptoms and pancreas area pain. I am working on my diet. Wondering if that is playing a role as well. I have grade 2 metastatic with pancreatic primary tumor.

Keto diet may work best. No sugars
and Low carbs. I would imagine that your diet can help because it seems, I remember reading, it similarly puts your body into a similar state as does the Everolimus drug would, but that drug has many side effects. By the way one of the side effect of Lanreotide is Pancreatitis read the side effects.

if you are taking proton inhibitors it can increase your Chromogranin A results. Something I recently read.

Read the side effects of Lanreotide they include pancreatitis.

Thank you Terryrandy5!

I have read that it is a more rare side effect. I have also had some tongue swelling. Not major but I have had it. I will discuss further with my oncologist. We talked about it last time as well but he didn’t seem to think it was due to the injections. We did some additional pancreas bloodwork.

I have metastatic liver NETs (secondary to pancreatic), have been on the shot for a year now (it's my 2nd go around with them as I could not tolerate it the 1st time I tried) and I still have off and on again liver pain, but am tolerating the shots much better. The tiredness gets old, but unfortunately i'm on other rx's that do the same. If you haven't, try the shots again after a few months or even years if your oncologist is cool with it and jives with whatever your current therapy is.