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DiscussionAnyone still have pancreas pain while taking Lanteotide?
Neuroendocrine Tumors (NETs) | Last Active: Sep 20, 2023 | Replies (18)Comment receiving replies
Replies to "if you are taking proton inhibitors it can increase your Chromogranin A results. Something I recently..."
You are right, @terryrandy5. The Chromogranin A results can be impacted by other meds, such as proton pump inhibitors as well as other health conditions.
If anyone in this group is concerned about high Chromogranin A results, I would encourage you to participate in this discussion on Connect.
https://connect.mayoclinic.org/discussion/chromogranin-a-level-was-539/
It is good for us all to remember that one test is not enough to raise worries about disease progression. Most doctors will tell you that you need to base your concerns on several different diagnostic tools, not just one.
Here is some information from the Carcinoid Cancer Foundation (CCF) regarding many of the diagnostic tests that can be used to diagnose and track the progression of NETs:
https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/
We do ourselves a disservice when we try to pin our disease on just one diagnostic test to provide us with answers.