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SI joint fusion

Bones, Joints & Muscles | Last Active: Feb 21 7:00am | Replies (32)

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@dlydailyhope

Hi, @maddiemae. I have been suffering with this type of pain for over 7 years and know how difficult this can be. I have congenital cervical and lumbar spinal stenosis, especially at c5c6 and l4l5 with radiculopathy. I am not able to stand, walk, lift, carry much for long. Sitting too long isn’t good either so need to make small, frequent movements to adjust position. Lidocaine pain patches have helped some and I need to lie down to rest when pain level is high and nerves get irritated. It seems warmer temperatures affect my nerve pain and not sure why so I try cooler showers and room temperatures. I have also had some temporary relief for 3+ months with spine injections (combination of lidocaine and prednisone medications). Duloxetine/Cymbalta has helped some with nerve/arthritis pain and depression that comes with chronic pain. Also have had some relief with Alpha Lipoic Acid and Acetyl L Carnitine supplements. I had ACDF surgery on c5c6 which helped some and may need l4l5 surgery soon (numbness in hips, buttocks and feet on both sides and pain that radiates down on my right hip to foot). Wishing you the best!!! You are not alone in your suffering.

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Replies to "Hi, @maddiemae. I have been suffering with this type of pain for over 7 years and..."

Hi. Thank you for for your kind and informative message and I am so sorry for your long-lasting pain.

I was first diagnosed with an SI joint issue and after that an L5 S1 problem. After x-rays and a recent mri I was diagnosed with spondylolisthesis for which surgery was recommended so I'm on the road to that.

I take 2400 mgs of gabapentin, alpha lipoic acid, duloxetine, lidocaine patches, celebrex. I'll try the other supplements you mentioned. I also have central pain syndrome and dysautonomia. You've been through surgery and with the kind of pain we're suffering it seems that's the only answer. And yes, you described perfectly the inability to walk, stand, sit for very long, and the need to go to bed. Just being up for a short amount of time is exhausting. I feel like I'm missing life. There really is no way to get relief. We suffer chronic pain which causes depression but my doctor said I am on the highest dose of duloxetine I can take.

My thoughts are with you.

I'm sorry. I misread and thought you had been through surgery for your many issues. Has it been recommended?