Referral request for NYC-area PN Specialist. Hi. I have serious PN in my feet causing pain and difficulty walking. My neurologist has proven useless and seemingly uncaring. Can anyone please refer me to ''the man or lady'' in this specific field? Thank you very much ! Brucelawreformer @ gmail.com
peripheral polyneuropathy diagnosed in 1994 over time it gotten worse, also have restless leg problems, I have never been given anything that helps with this problem.
@jlpdurham526
For restless leg syndrome, I faithfully drink about 6-8 oz. of diet tonic water each night before I go to bed. It has just enough quinine in it to quiet my legs. It's inexpensive (I get 2-liter bottles at the grocery store) and it basically is a great, non-drug solution to a devilish issue.
@jlpdurham526
For restless leg syndrome, I faithfully drink about 6-8 oz. of diet tonic water each night before I go to bed. It has just enough quinine in it to quiet my legs. It's inexpensive (I get 2-liter bottles at the grocery store) and it basically is a great, non-drug solution to a devilish issue.
Referral request for NYC-area PN Specialist. Hi. I have serious PN in my feet causing pain and difficulty walking. My neurologist has proven useless and seemingly uncaring. Can anyone please refer me to ''the man or lady'' in this specific field? Thank you very much ! Brucelawreformer @ gmail.com
Hello @brucea, welcome to Mayo Clinic Connect. I have small fiber PN in my feet and ankles but no pain, only numbness. I was diagnosed at Mayo Clinic Rochester but I'm guessing you are trying to find a specialist or neurologist close. I did a quick search and found a few possibilities that may be OK but I'm hoping someone in the area can offer a suggestion.
@jlpdurham526
For restless leg syndrome, I faithfully drink about 6-8 oz. of diet tonic water each night before I go to bed. It has just enough quinine in it to quiet my legs. It's inexpensive (I get 2-liter bottles at the grocery store) and it basically is a great, non-drug solution to a devilish issue.
I was looking up the meaning of quinine and found this articular.
The quinine in tonic water helps give it a bitter taste. People should not mistake tonic water for a healthful drink, as it may contain sugar and provides no additional nutritional value. Tonic water cannot help a person with leg cramps or restless legs syndrome.
The quinine in tonic water is very diluted. December 12, 2006, the FDA ordered unapproved quinine drug products to be removed from the market and cautioned consumers about the off-label use of quinine to treat leg cramps.
I was looking up the meaning of quinine and found this articular.
The quinine in tonic water helps give it a bitter taste. People should not mistake tonic water for a healthful drink, as it may contain sugar and provides no additional nutritional value. Tonic water cannot help a person with leg cramps or restless legs syndrome.
The quinine in tonic water is very diluted. December 12, 2006, the FDA ordered unapproved quinine drug products to be removed from the market and cautioned consumers about the off-label use of quinine to treat leg cramps.
John, Volunteer Mentor | @johnbishop | Jan 12, 2019
Hi @inspect28, welcome to Mayo Clinic Connect. @elizm, @jlpdurham526 my wife gets leg cramps at night when she doesn't drink enough water and gets a little dehydrated so I think there is a little truth to what you both say. I think this article puts it in perspective:
Connect
Connect
Like
Helpful
Hug
I found the information too technical for my needs. Thanks.
mlmcg
Referral request for NYC-area PN Specialist. Hi. I have serious PN in my feet causing pain and difficulty walking. My neurologist has proven useless and seemingly uncaring. Can anyone please refer me to ''the man or lady'' in this specific field? Thank you very much ! Brucelawreformer @ gmail.com
peripheral polyneuropathy diagnosed in 1994 over time it gotten worse, also have restless leg problems, I have never been given anything that helps with this problem.
@jlpdurham526
For restless leg syndrome, I faithfully drink about 6-8 oz. of diet tonic water each night before I go to bed. It has just enough quinine in it to quiet my legs. It's inexpensive (I get 2-liter bottles at the grocery store) and it basically is a great, non-drug solution to a devilish issue.
-
Like -
Helpful -
Hug
1 Reactionthank you, I will try that.
-
Like -
Helpful -
Hug
1 ReactionHello @brucea, welcome to Mayo Clinic Connect. I have small fiber PN in my feet and ankles but no pain, only numbness. I was diagnosed at Mayo Clinic Rochester but I'm guessing you are trying to find a specialist or neurologist close. I did a quick search and found a few possibilities that may be OK but I'm hoping someone in the area can offer a suggestion.
The Peripheral Neuropathy Center at New York-Presbyterian Hospital/Weill Cornell Medicine
-- https://neuropathy.weillcornell.org/our-physicians/
Columbia University Department of Neurology
-- http://columbianeurology.org/patient-care/peripheral-neuropathies
Have you been given a specific diagnosis?
John
I was looking up the meaning of quinine and found this articular.
The quinine in tonic water helps give it a bitter taste. People should not mistake tonic water for a healthful drink, as it may contain sugar and provides no additional nutritional value. Tonic water cannot help a person with leg cramps or restless legs syndrome.
The quinine in tonic water is very diluted. December 12, 2006, the FDA ordered unapproved quinine drug products to be removed from the market and cautioned consumers about the off-label use of quinine to treat leg cramps.
@inspect28 @jlpdurham526
Nonetheless, it works; my doctors approve; and I sleep at night....
Hi @inspect28, welcome to Mayo Clinic Connect. @elizm, @jlpdurham526 my wife gets leg cramps at night when she doesn't drink enough water and gets a little dehydrated so I think there is a little truth to what you both say. I think this article puts it in perspective:
Harvard Women's Health Watch - Will tonic water prevent nighttime leg cramps?
-- https://www.health.harvard.edu/bone-and-muscle-health/will-tonic-water-prevent-nighttime-leg-cramps
My thoughts are if you know something helps you then it's a good thing and I would keep doing it. The caveat is that it may not help everyone.
There is little if any quinine in it and filled with artificial sweeteners. Better off drinking plain water or checking with a reliable pharmacist.