Thank you for your post. I did an incredible amount of research today, including sites from UK (which gave me a professional organization). I learned a great del, and will post those sites here on another night. Everything I read captured precisely what I've been experiencing.
Right now, I am winding down from a long day, which also included PT session for my left knee that was also seriously damaged during the fall that damaged the ankle/foot.
How wonderful that your daughter was able to obtain care at Mayo! If it were possible, I would so want to do the same. I'm happy for her, that her quality of life will be so much better!