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Autoimmune Diseases | Last Active: Sep 14, 2023 | Replies (35)

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@buzz23

How are you doing now?
Yes, the fatigue comes from lupus. I do very little physically.
Yes, the meds are tricky. I can't take hydroxychloroquine because I am allergic to it and my eyes are not okay. I can't tolerate methotrexate, I can't tolerate cyclophosphamide either and it almost killed me. Mmf, azathioprine and rituximab are the last ones that are available. The rituximab is hard to tolerate, the other 2 are okay.
Thank you, I hope we find something soon too.

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Replies to "How are you doing now? Yes, the fatigue comes from lupus. I do very little physically...."

What happened when u took Retuximab?
I’m supposed to start an infusion next week first time.