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Replies to "@buzz23 I can feel your fatigue. I spent a few years very fatigued- sometimes on my..."
Autoimmune Diseases | Last Active: Sep 14, 2023 | Replies (35)
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@buzz23
I can feel your fatigue. I spent a few years very fatigued- sometimes on my bed panting. I had some unknown GI autoimmune disease. Eventually a diagnosis was found and I chose to try Imuran. It worked but also caused a lot of infections.
Am I right to think that most of your fatigue comes from lupus?
You seem to be on a few meds for lupus. I assume it’s hard to find meds that work and you tolerate. Hoping you and your doctor can find meds that control the illness without side effects and that it leads to improved energy.
Replies to "@buzz23 I can feel your fatigue. I spent a few years very fatigued- sometimes on my..."
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How are you doing now?
Yes, the fatigue comes from lupus. I do very little physically.
Yes, the meds are tricky. I can't take hydroxychloroquine because I am allergic to it and my eyes are not okay. I can't tolerate methotrexate, I can't tolerate cyclophosphamide either and it almost killed me. Mmf, azathioprine and rituximab are the last ones that are available. The rituximab is hard to tolerate, the other 2 are okay.
Thank you, I hope we find something soon too.