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5 CRP tests resulting as High, but no Dx!
Autoimmune Diseases | Last Active: Sep 10, 2023 | Replies (38)Comment receiving replies
The worst thing right now is the diarrhea, which is constant, literally. And, I have incontinence, both urine and bowel, so that tells you the "messes" i get into! LOL! My former GI, told me I must "learn to manage my expectations" about the diarrhea, whatever the "H" that means! My stomach bothers me most all the time. The Mayo GI I went to, because of other problems I had, put the diarrhea to the bottom of the list, in spite of me being graphic about the problems I am having, to get their attention. And, even with all the diarrhea [and vomiting] I have, I am gaining weight instead of losing it, sometimes 4-5 lbs a day! It is just craziness! Yes, I may have to think about a major medical center or university hospital, if I can get myself to the point to where I can leaving the house! 😉
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Replies to "The worst thing right now is the diarrhea, which is constant, literally. And, I have incontinence,..."
I thought Mayo IS supposed to be a major medical center? Isn't that why we are here? Its crazy in my book to feel you've gotten rotten care on their own forum without them contacting you even from this post. Just to protect their own reputation. I wish big medical orgs cared more. Sometimes is you find a small practice nearby, well, a big fish in a small pond? I need to look up CRP. My body is so inflamed. Constant pain and IBS too. Manage your expectations? Like stop asking me to care? Annoying and esp disheartening to have this be Mayo itself as many across the country see them as a big medical system. Like Duke and Mayo should kind if be equal? Disheartening. I need to write a book about bad care too. Keep talking.
@pkh3381, clearly the diarrhea is negatively affecting your quality of life. It sounds like you've taken all the right steps to make this clear during your consultations and need this serious symptom to be addressed.
You may wish to speak with some at Mayo's Office of Patient Experience. You can call them at 844-544-0036
If you prefer written communication, you can use the online form provided on the webpage here: https://www.mayoclinic.org/about-mayo-clinic/patient-experience
A specialist at the Office of Patient Experience can facilitate communication between you and your GI specialist to help find a solution.
As @bebold rightly said, Mayo Clinic is a major medical center. I'm glad that you are already a patient at Mayo Clinic and can benefit from their team approach.
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@pkh3381 Yes, go to a medical center or university hospital! Please! I had the exact same problem and got some help from a gastroenterologist. A colonoscopy showed that I was deficient in pancreatic enzymes so now I take medication for it. My neurologist also thought it was a serious side effect of one of my meds, so that got changed. I’m better now and have regained the 20# I lost.
Diarrhea can be very dangerous as you lose necessary vitamins and nutrients plus all the fluid.
Please call today and let me know. Becky