Hi John thanks for responding, all my symptoms seem to point to amyloidosis,but ALL tests so far are negative.Biopsis,pet scan,mri,s bone scans,genetic testing ,my doc has ran them all. One of my main problems is being afraid of the future and what will happen to me. I try to stay positive but sometimes I feel like giving up. Maybe this Mayo connect can help me,you are so kind to welcome me. I do look forward to sharing with you and from you.