← Return to Anyone here dealing with peripheral neuropathy?

Discussion

Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)
Comment receiving replies
@johnbishop

Hi Larry @larryl, welcome to Mayo Clinic Connect. I'm glad you found us! There is definitely a lot of different experiences here with different treatments and diagnosis. I have idiopathic small fiber PN but only have numbness and no pain (20+ years). My neuropathy is in my feet, ankles and just above the ankles a little.

Did your doctors or neurologist give you a diagnosis yet?

Hope you find something that works for you.

Jump to this post

Replies to "Hi Larry @larryl, welcome to Mayo Clinic Connect. I'm glad you found us! There is definitely..."
LarryL | @larryl | Jan 4, 2019

Hi John thanks for responding, all my symptoms seem to point to amyloidosis,but ALL tests so far are negative.Biopsis,pet scan,mri,s bone scans,genetic testing ,my doc has ran them all. One of my main problems is being afraid of the future and what will happen to me. I try to stay positive but sometimes I feel like giving up. Maybe this Mayo connect can help me,you are so kind to welcome me. I do look forward to sharing with you and from you.

VIEW AND REPLY