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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)
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@larryl

Oh my it’s absolutly the worst possible symptoms I have ever experienced in my life! Burning numbness tight severe pulling and pressure on sooo many areas of my body.hands feet are just the beginning. Only treatment so far after 10 months of scans and tests and biopsies and pet,scan is some pain meds but they just help a certain amount. I am starting to go crazy,sorry I rambled....how are you doing? Oh my name is Larry I’m 65 years old.

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Replies to "Oh my it’s absolutly the worst possible symptoms I have ever experienced in my life! Burning..."
peggyella | @peggyella | Jan 4, 2019

Hi, Larry. P. Neuropathy 20 yrs here. Personally, I found that narcotics did not help nerve pain. The most beneficial drug I found is gabapentin (start at a low dose and move up). Just my opinion.

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John, Volunteer Mentor | @johnbishop | Jan 4, 2019

Hi Larry @larryl, welcome to Mayo Clinic Connect. I'm glad you found us! There is definitely a lot of different experiences here with different treatments and diagnosis. I have idiopathic small fiber PN but only have numbness and no pain (20+ years). My neuropathy is in my feet, ankles and just above the ankles a little.

Did your doctors or neurologist give you a diagnosis yet?

Hope you find something that works for you.

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