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What's your experience with Actemra for GCA?
Polymyalgia Rheumatica (PMR) | Last Active: Apr 1 6:23pm | Replies (28)Comment receiving replies
My case could be totally different. If it is working for you please don’t discontinue based on my story. We all know the risks with any immunosuppressive drug. I am just an unlucky person. I stopped the very small dose of prednisone I was taking shortly after beginning Actemra in 2022.
On the positive side my PMR does not seemed to have flared as of yet. Maybe after five years it is ready to be done terrorizing my body. I hope Mayo Clinic can give me back some of my life. Best wishes to you for better health.
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I'm sorry you had a bad experience.
Our individual experiences are always so different. One size never fits all.
I don't want anyone to try Actemra based on my experience alone. I try not to hype Actemra up too much.
Same thing with prednisone even though I was more than ready to try something new after 12 years. If prednisone works and doesn't cause too many side effects-- so be it!