My case could be totally different. If it is working for you please don’t discontinue based on my story. We all know the risks with any immunosuppressive drug. I am just an unlucky person. I stopped the very small dose of prednisone I was taking shortly after beginning Actemra in 2022.
On the positive side my PMR does not seemed to have flared as of yet. Maybe after five years it is ready to be done terrorizing my body. I hope Mayo Clinic can give me back some of my life. Best wishes to you for better health.