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Chronic Pain | Last Active: 5 days ago | Replies (849)
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Replies to "Diagnosed with spindle cell sarcoma. I guess very rare. I never do normal stuff. This is..."
I'm not your A-Typical patient either, don't feel bad. There are many others like us out there.
I am so sorry that you have gotten to this point, and had to endure so much. I am sure it has been really difficult for you, and you are feeling discouraged, but don't give up the fight. As you stated, you are only 68.
With the surgeries and Radiation next, worrying is going to be a waste of time mentally and physically. I mean that literally from my own experiences. I would immediately focus my energy on how to restore my body from my illnesses and treatment, and trauma (both physically and mentally). Don't overwhelm yourself, just take one step at a time; every little bit helps. In addition to your regular treatments, you may want to consider adding in natural and/or holistic supplements that will not interfere with your other procedures or their positive outcome. Talk to a holistic doctor.
I also have had a lot to deal with over the years. Cancer, complete hysterectomy due to reproductive issues and severe pain, GI issues, Polymylasia Rheumatica (PMR) which symptoms started 3+ years ago, but whose counting? (finally received a diagnosis a week and a half ago), side effects of treatments and drugs over the years, being bedridden in my 50's and 60's, etc. I am now waiting to have my second torn meniscus root repaired, which caused a fracture in my left knee, but can't have that done until my Rheumatologist gets the PMR under control. My gall bladder surgery has also been put on hold. Life sucks some times, but there nothing that isn't worth fighting for.
So you see, it's not where you are right now that matters as much as where you need to get to. Keep up the fight. Don't give up. This is wonderful group of concerned people, and they can help you get through this as well.