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Replies to "@buzz23 You are having a tough time! I understand that you were diagnosed with lupus—did all..."
Autoimmune Diseases | Last Active: Sep 14, 2023 | Replies (35)
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@buzz23 You are having a tough time! I understand that you were diagnosed with lupus—did all the other issues come about because of the lupus? What lupus treatment are you currently on?
Can you tell me about the doctors that you are seeing and do you feel comfortable with them? I hope to hear back from you!
Replies to "@buzz23 You are having a tough time! I understand that you were diagnosed with lupus—did all..."
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@becsbuddy Thanks for the response.
Yes, most of the other issues are because of the lupus. I am currently on mycophenolate mofetil, azathioprone, and rituximab, plus the drugs to handle the other issues. I am allergic to hydroxychloroquine and have eye issues, so I didn't take that. I was on methotrexate but I couldn't tolerate it. I was also on cyclophosphamide but it had to be discontinued because I wasn't tolerating it well and it drowned my lungs.
I have one primary physician, she is a rheumatologist. I see other doctors as the need arises like infectious disease physicians, ortho surgeons, cardiologists, ophthalmologists etc. I am comfortable with my rheumatologist.
We don't have a lot of rheumatologists where I am though.