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Perineural or Tarlov cysts

Spine Health | Last Active: Apr 18 5:37am | Replies (96)

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@jsc

I was recently diagnosed with an “incidental” tarlov cyst at S2. Referred to a neurosurgeon who reviewed my MRI and confirmed it is a “normal tarlov cyst” and referred me back to my PCP for pain management. All of this was done without an evaluation/discussion with me directly. I quickly deducted this particular neurosurgeon simply has the belief of treating tarlov cyst's with only pain management courses. I am awaiting follow up with my PCP. I have combed through the Tarkovsky Cyst Foundation resources and am in progress of seeking a phone consultation with Dr. F. in Dallas, TX.

Has anyone ide tidied an active/current neurosurgeon with Mayo Clinic who treats tarlov cysts?

Pain management drugs is not an option for my use case as those options in my opinion are detrimental to the gut microbiome. I am an avid athlete and desire to remain active for years to come.

Seeking any assistance possible.

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Replies to "I was recently diagnosed with an “incidental” tarlov cyst at S2. Referred to a neurosurgeon who..."

@jsc I happened to see your post. I don't know if you are still looking for a physician for Tarlov cysts, but my spine neurosurgeon at Mayo Rochester, Jeremy Fogelson, has co-authored a paper about a surgical clinical case with them.
https://www.mayoclinic.org/biographies/fogelson-jeremy-l-m-d/bio-20055624
In looking at the similar literature credits, I see another Mayo physician name at the Jacksonville campus who also works with Tarlov Cysts. His profile is
https://www.mayo.edu/research/faculty/quinones-hinojosa-alfredo-m-d/bio-20247553
This is the paper I found on a case with Tarlov Cysts from my Mayo surgeon.
https://pubmed.ncbi.nlm.nih.gov/28521343/
Jennifer