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DiscussionWhat's your experience with Actemra (tocilizumab) for GCA?
Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (40)Comment receiving replies
Replies to "@dbyrne, I'm also tagging you in this discussion as well to read many members' experiences on..."
@JustinMcClanahan
Hello - it's been 2 years since the last response so not sure this thread is active. Briefly, was luckily got a quick diagnosis for GCA via temporal artery biopsy. Was put on 60 mg Prednisone while the prior authorization for Actemra (really Tyenne) was processed. I didn't start the Prednisone titration until 2 monthly infusions. I did a 3 month tritration for Prednisone, at 1.5 mg now so almost done. My Rheumatologist wants me to be on the infusions for at least 12 months and then will consider stopping. My heart goes out to all of you who have had to take long courses of Prednisone. I found the side effects were awful. I have not had any side effects with Actemra but of course my immune system is suppressed. Luckily my I can easily socialize outside.
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Thank you, very helpful.