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Is it necessary or helpful to see an immunologist to deal with MAC?

MAC & Bronchiectasis | Last Active: Sep 9, 2023 | Replies (17)
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@dls224

I really liked Dr Johnson in our tele visit. The buck may stop with her for me with our November meeting in person outside of going to NJH next year.

I think you may be doing the right thing for yourself moving to a better area for your lungs! I would definitely figure out a way to do that for myself if I were you!

Let me know how it goes with Mayo!

Brother in law lives in Panama City Beach many years and loves it there btw! I’ve never been. I’m in South Florida; Palm Beach county and the Keys part time.

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pacathy | @pacathy | Sep 7, 2023

I agree with Sue. I have seen an immunologist in the past for another condition that’s in spontaneous remission, but I don’t see a reason to consult one now unless you’re having allergy symptoms.
I also agree about the number of docs. These specialists are a very limited resource we need to share. My first had an emergency leave and it was very difficult to get another when I was due for follow up testing to get a diagnosis. At that point, I just had abnormal CT’s suggestive of MAC. I lucked out when Mayo had a cancellation. Once they diagnosed me with bronchiectasis, I was able to get into Penn’s clinic after 6 months. They’ll be my local provider.
I’d suggest one as near you as possible who’s up to date and one for a consult/guidelines from a big center. Just a thought . I do understand your hope to have choices.

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