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Confused and Frustrated About What Is Going

Neuropathy | Last Active: Sep 6, 2023 | Replies (13)

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@ray666

Good morning, @julbpat. I've prepared just that way for my annual later day: I made a copy of my hematologist's lab report to leave with my PCP. After another cup of coffee, I'm going to phone my neurologist's office to ask why I've not heard back from him; I sent him a copy of the same report over a week ago to ask if possibly he saw something that might have bearing on my PN. It does take a little extra effort, but I believe it's important: even though all of our medical activity is supposed to be archived digitally and available to all of our doctors, I find it still helps to hand them things like lab reports on paper. ––Ray (@ray666)

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Replies to "Good morning, @julbpat. I've prepared just that way for my annual later day: I made a..."

I messaged my neurologist last week to ask a question about prednisone, efficacy, corresponding lab values, possible relation to SFN, and his response basically was "I don't know, it's confusing". That's why I asked him - it's confusing! Not a very helpful answer! Since my main symptom is pretty much constant pain, prednisone and it's magic is another whole topic for another day.