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365 days later after surgery to remove esophageal cancer at Mayo

Esophageal Cancer | Last Active: Oct 18, 2023 | Replies (28)
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@l1krieger

Good job, hope all continues to go well with you.

I'm in my second week of Chemo/radiation. Recovering from the shock of everything. My spouse is going crazy after meeting with the surgeon, all bad news. Worst case scenario, of course. That's what Docs do.

Maybe I can pray this tumor away. It has not spread, it is still local in my midlevel-esophagus wall T3-T4. I've read many successful stories here, what happened to the rest of he EC folks. Are they in a nursing home, drooling, looking out the window on a nutrition tube? Not trying to be mean, sorry. What percent actually make it through the whole procedure?

Thanks for your support

Larry Krieger

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Replies to "Good job, hope all continues to go well with you. I'm in my second week of..."
Don Higgins, Volunteer Mentor | @dsh33782 | Sep 6, 2023

Larry
I remember going through the 28 days of chemo and radiation with numerous side affects. I was always tired, no appetite (was on feeding tube for several months), for a while I was coughing and spitting up a lot, and some diaherra. It took about 6 weeks after it was all done before I really felt good and could eat and swallow normally again. Regarding you question about survival rates, it appears that esophageal cancer is rare (less than 1% of all cancers) and those who are diagnosed and treated early have an average survival rate of 80% beyond 5 years. The fact that you are being treated is a good sign so try and be positive. I'd be happy to try and answer questions you may have based on my experience. Let us know how it is going?

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justtrust | @justtrust | Sep 7, 2023

I feel for your spouse—and for you.
After so much waiting & even errors, 2 days ago we were told my husband’s esophagus-stomach-juncture tumour/ cancer is incurable, terminal.
The very next day they admitted him to begin chemo which they say will be ongoing on a 2 week cycle.

How do I get honest about this with my 11 year old and 6 year old? That, and managing the chemo & immunotherapy—those are the next hurdles.

I’m frustrated with God and confused. But I know only Jesus will get us through this, whether he changes the outcomes or not.

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