Chronic nausea, right upper quadrant pain. I wake up every and I mean every single night of my life for 30 months now with debilitating pain and nausea. My sinuses clog, I have developed chronic constipation and have seen every Doctor concerning these issues. I have had over 25 ct scans, head, belly, back, chest, liver, 6 MRI's, multiple ER visits, Allergists, ENT's, Cardio, Gastro's, Internists, Psychiatrists, Acupuncture, PT, Orthopedic, Neurologists, Neurosurgeons, Holistic Practice , Hypnosis and I can't take it anymore. Mine started with a fall striking my side and my ear. I suffered a Detached Retina from the fall and my nausea, started when i awakened from the Surgery. It has gotten worse along with other issues. Chronic Constipation, stomach pain and
flu like symptoms daily. My hands now swell and I hurt all over most of the time. I am interested in the Mast Cell
Test, because I do have allergies. Other than that, according to the Doctors I am healthy. I feel horrible all the time for the Doctors to tell me there is nothing wrong. I know my body and I hate being sick and in pain. The nausea is the worst. I have never smoked or drank, I do not take meds other than Tylenol and Advil. I have a missing enzyme in my Liver that does not work on meds. I react totally differently when taking most meds. We are heartbroken and I can't enjoy one day without nausea and pain waking me every night between one and 2 a.m. and I walk the floor
holding my side and nauseated. I can't vomit, due to the Nissen Wrap done 20 years ago for Acid Reflux. I am
desperate for help. Please any information and where to go for help. No one listens. I am a Retired State
Employee and Watercolorist. Can't take the nausea anymore due to this awful state of Pain. I have been
married 54 years and happy, but it is taking it's toll on my entire life. My Nausea lasts at least 16 to 18 hours,
I sleep about 4 hours and I am up the rest of the night and my organs feel dead inside. I tried to get into Mayo and the appointments are so far out. I don't have that long to wait. I would like to feel better for at least a year or two before I die. I am 74 and suffering now since 71. It is heartbreaking when your Doctor will not believe you. I sure don't ask for pills, I just want help and a diagnosis. I can live with a diagnosis and hope. I love helping people and I am a generous person, now I need help and can't get it. It is funny how you are abandoned when your friends look at you and wonder, is it Mental. No it is not, but the pain and nausea are real. I would not wish this on anyone. I just need someone to listen to me and help me. My cognitive skills and memory
have not suffered, just my stomach and daily functions. I am strong and will not give up, but I admit it is so hard. Please help if you can.
I too had stomach pain for years - upper right quadrant. It was nowhere near as severe as yours, but constant and nothing seemed to relieve it. I too was tested for a variety of ailments.
I had always taken NSAID's for arthritis and an overactive inflammatory reaction to many things, primarily Ibuprofen (Advil), and occasionally some Tylenol. Then I realized I got a lot worse from Tylenol - but usually a day or two later and stopped using it on my own.
My PCP finally convinced me to stop using Ibuprofen in 2020, and after about a year the stomach pain was only intermittent. I did have to resort to a pain management clinic and alternative meds and strategies for the arthritis pain.
Pain management taught me a lot, including how to manage to live with the pain that cannot be totally alleviated.
You said "I tried to get into Mayo and the appointments are so far out. " Why not make the appointment now and look for alternatives in the meantime. Also, if you are near a Mayo Clinical practice in Minnesota or Wisconsin you may be able to get into "the system" that way. Or perhaps a referral from your doctor?
Sue