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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: May 29 7:12pm | Replies (422)
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@roslyn2314

I’m in Australia and going in for my first round of 5 next week. Firstly diagnosed with SFN then LFN as well and now CIDP so by process of elimination ie lumbar puncture mri nerve tests here we are ….fingers are crossed.

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Replies to "I’m in Australia and going in for my first round of 5 next week. Firstly diagnosed..."
jfn | @jfn | Sep 7, 2023

@azza1
Try to drink as much water as you can ( not more than 120 ounces) the day before,the days of, and the days after, this is done to reduce headaches. I also try to move as much as I can, while having the infusion, all that water helps ;).

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suetex | @suetex | Sep 7, 2023

Just found out that I am going this monday for my first round of 5 also. Mine is SFN due to Sjogren's with muscle wasting and balance problems. Pain has been a recent phenomina. Fingers crossed to both of us.

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