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Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: Oct 3 7:57am | Replies (491)Comment receiving replies
I’m in Australia and going in for my first round of 5 next week. Firstly diagnosed with SFN then LFN as well and now CIDP so by process of elimination ie lumbar puncture mri nerve tests here we are ….fingers are crossed.
Replies to "I’m in Australia and going in for my first round of 5 next week. Firstly diagnosed..."
Just found out that I am going this monday for my first round of 5 also. Mine is SFN due to Sjogren's with muscle wasting and balance problems. Pain has been a recent phenomina. Fingers crossed to both of us.
Hi! I’m from australia too, with sfn symptoms and autonomic symptoms like dry mouth since a vaccine 5 weeks ago. not sure if there’s a way to message me or not, but i’d really love to learn who diagnosed your sfn and how did they determine you had it - was the lumbar puncture the final decider ? i know there’s a type of antibody they can test for as well. no idea what’s available in this country!
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@azza1
Try to drink as much water as you can ( not more than 120 ounces) the day before,the days of, and the days after, this is done to reduce headaches. I also try to move as much as I can, while having the infusion, all that water helps ;).