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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)
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@maryy

@johnbishop I also read about it and I was worried, plus so many others. Rituximab (Rituxitan) has been the drug of choice for treating peripheral neuropathy due to MGUS when only intravenous immunoglobulin (IVIG) does not work. I tried IVIG only once and it got worse. All I desire, however, is not to use Rituxitan. l don´t like immunosuppressants.

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Replies to "@johnbishop I also read about it and I was worried, plus so many others. Rituximab (Rituxitan)..."
John, Volunteer Mentor | @johnbishop | Oct 9, 2018

Hi @maryy, I take supplements for my small fiber peripheral neuropathy that have helped me. It's not a cure but it does help with the symptoms and it's all over the counter vitamins and supplements. I learned about the supplements through a closed Facebook group. They have a website that also has a link to join their Facebook Group - http://solutions2pnpd.com/. I posted a question to the group to find out if anyone has MGUS and has the protocol of supplements helped them. One of the members with MGUS posted that she has been on the protocol for 22 months and that her igm numbers started going down until they were not detected. She also said there were a few members with MGUS in the group. I would recommend joining the group and just learn what it's all about by reading their new member introduction after joining. Once you are a member you can post questions to the group about MGUS and meet other members with the same condition.

You can read my story of how I found the group here:
-- https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

@maryy can you keep us updated?

John

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