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DiscussionAnyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
Replies to "Hi @maryy, welcome to Connect. I have small fiber peripheral peripheral neuropathy with only numbness and..."
I'm new to the group. I'm hoping that talking with others who understand helps. I'm a 41 year old female from SC. I have dealt with diabetes for 11 year's now. My numbers stay out of control because I don't change my lifestyle. I'm mad as hell and feel I have been dealt a real crappy life when it comes to my health. I haven't always had best of doctors. I have a tremendous amount of pain in my back. I woke one morning to my right leg shaking uncontrollably, best describe like when a dog scratches with it's leg. Mri's didn't show no reason for my leg doing this, physical therapy did not help, injections the first out of the 3 series worked, the others a waste of time. Here in SC if you ask for pain meds, they look at you as if you are a junkie, especially younger people. About 5 months ago over night both my feet started tingling and fail as if they were numb from being asleep, at times I have sharp pains that go through my ankles, I went to see a foot Dr. He done a biopsy which come back as small sensory nerve damage due to diabetes. He tells me to take the meds that their office has ($35.00/ month,not covered by insurance). I told him for me that was a lot of money, I'm unable to work and some how make It on $600 a month. I ask if any other options. My answer was either take the meds and come back in 2 months or he could not do anything else for me. I have no choice,I get the meds and begin taking them. I knew after the first month that they were not helping me but I wanted to follow doctor's orders got my second bottle, I started having really bad muscle pains in the back of my legs it actually felt like my muscles are deteriorating. After the second smallest bottle was finished I went back for my follow-up to let him know that the meds did not do much good and I also had another problem with my muscles, kissing to diagnose me with restless leg syndrome and I'm going to see a rheumatologist. I have tried to research and understand neuropathy on my own. I I am out that neuropathy is not only caused by diabetes but it could come from a lack of vitamins. I ask Dr how could they tell if it was the lack of vitamins or blame it on my diabetes his response he couldn't. As I mentioned earlier I have not had great doctors. I went back to look at my blood work from previous A1c lab results and I find that a lot of my numbers were very low and should have been corrected a lot dealing with vitamin deficiency, so here I sit off the meds he had me taking,no pain medicine because the doctor said it would not help the pain from neuropathy.lol but.... But in the meantime we're waiting to go to the rheumatologist when I finally pass out and go to sleep that's when I sleep. This is a difficult life with an 11 year old daughter and a 8 week old grandson. I see a lot of you mentioned that Gabapentin did not help it did not help me either I only gained weight with it. My depression has worsened due to lack of sleep and pain. My feet hurt so bad I cannot hardly walk. The medication that the doctor had me take i will put it below because you can order it online. you never know it may help someone else out there. I have been in front of a SC judge and turned down for my disability, mainly only being 41 was a big factor in their decision. I am applying once again but this time with more health problems than before. Anyone know of testing that I can have done to help get my disability approved in South Carolina. Sorry for such The Long blog but I wanted my whole story out. Look forward to being in the group. NeuRx-TF..... It contains a lot of the b vitamins.
@johnbishop Thank you. I have tingling and numbness. My neuropathy is due MGUS / Monoclonal Gammopathy of Undetermined Significance. Doc recommends Rituxitan /immunosuppressant