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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)
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@marymckeith

Thanks so much. I need all the info I can get. Please let me know how it works out. At the ER because of weakness they said the type 2/diabetic reading wasn't that high but the weakness was profound. Everything else about me has been checked on throughly. I am on 17.5 prednisone but occasionally have to up it a little which I hate to do. You were so nice to respond. Interested you divide the dose between morning and evening. Maybe I should be doing that.

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terrym | @terrym | Sep 5, 2023

The split dose is against my rheumatologists wishes (actually a demand!), but it works for me. As I mentioned in my original post, when I went to morning only and stepping down from 20 to 17.5, within three days I was in severe pain again, went back to my 10 in the morning and 10 evening and was feeling much better the next morning and my "new normal" after two days. Stepped down to 10/morn and 7.5/eve that last two weeks and feel good enough to step to 10/morn and 5/eve starting today. Still a little leery that the 2.5 step will be a bit much, but will "listen to my body" and see what happens.

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