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Rare scalp Autoimmune disease… lichen planopilaris
Autoimmune Diseases | Last Active: Sep 5 7:44am | Replies (49)Comment receiving replies
My scalp always is red and inflamed. Also itches like crazy. It is a devastating thing to loss massive amounts of hair every day! I hate washing my hair to see even more hair loss. I use the medicated shampoo that seems to do nothing😥
Replies to "My scalp always is red and inflamed. Also itches like crazy. It is a devastating thing..."
@patsydell your situation sounds really bad and difficult for you. When did you get this diagnosis? When you were first diagnosed, were you started on any medication? Are you still taking it?
Have you thought about going to a comprehensive medical center or university hospital? Here is also a link to an organization that should be able to help you find a good doctor:
https://rarediseases.info.nih.gov/
Can you make some calls on Monday? Let me know what you learn. I really worry about you.
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I so understand. Does yours especially itch worse at night. Handful of hairs after washing hair in shower. It’s everywhere. I had extremely think hair before this started. So most people don’t notice unless they see if falling out. I use Routine shampoo and conditioner. I’ve tried so many different products. But it’s still falling out everywhere. The itch is awful. It’s very sad.