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Confused and Frustrated About What Is Going

Neuropathy | Last Active: Sep 6, 2023 | Replies (13)

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@ray666

Valerie (@lacy2), Sue Ellen (@SueEllen66),

Only this morning, Valerie, I'm feeling the very feeling you describe. Tomorrow, I've my annual checkup with my PCP. I know she'll begin by asking how I am. In years past, my reply would be a simple one: "Good," or "I have occasional sleepless nights" (something specific). When she asks how I am these days, my inclination is to reply, "How much time have you got?" or "Where shall I begin?" At the same time, I'm fully aware that my PCP has a day-full of patients, and she's on a tight schedule. Besides, she's a PCP, not a specialist.

However, I often have the same Q&A with my specialists: "How are you?" followed by the desire to say, "Where shall I begin?"

For years now, I've had this growing suspicion that I have a "parent" or "Ur" problem over-arching all of my highly localized problems (flat feet, arthritic joints, low red blood cell count, poor balance, unreliable gait, etc.). I had thought that my peripheral neuropathy might be my Ur problem, but now I'm not so sure; now I'm beginning to wonder if my PN is another of my subordinate problems and my Ur or parent problem is yet to be found.

Ray (@ray666)

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Replies to "Valerie (@lacy2), Sue Ellen (@SueEllen66), Only this morning, Valerie, I'm feeling the very feeling you describe...."

Ray - you have a kind PCP. Mine now begins my annual exam with “What were the four words the receptionist asked you to remember?” 😀😂🤪

Ray, I make sure my PCP receives copies of any lab work or test results that my other doctors order. I have a PCP, and three specialists - Neurologist, Pain, and Rheumatologist, from the years when my diagnosis was fibromyalgia. I drop off copies at each office as needed. It’s extra work on my part, but the system of electronic result sharing doesn’t always work well. That way my PCP has an idea of what’s going on, and doesn’t order duplicate tests, or can work off other results. Anyway, you get the idea!