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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@johnbishop

Hi Arnrob,
Glad you found the link. I think the price ends up to be 5 to 7 dollars a day total because some of the items are more than a monthly supply but ordering everything at once to start is a little less than $200 (I'm guessing). The group is a 501c3 organization and has a website ( http://solutions2pnpd.com/ ) that goes along with the closed Facebook group. There are also options for some of the items that are more bio-available and cost a little more so you can go with the lower cost ones but it normally means more pills (yuck). I would recommend joining the group and then reading all of their research files and new member information before ordering anything.
The group also has a Help Another Member (HAM program) that members donate to and the moderators select people who are having trouble affording the cost of the protocol.

I don't know if it will work for you but it's certainly worth a try if nothing else has helped. I would just like to reiterate that it's important to read through their information and do your own research if you have any questions. The group also has a weekly Facebook live session that new members can ask questions of others. While I don't have pain with my PN and only have the numbness I decided to try it. The numbness was in both legs from the toes to just below the knees. For me, after 2 months of taking the protocol the numbness went from just below the knees to just above the ankles. I really thought it was going to get rid of it. I've been taking it since Oct 2016 and it was Dec 2016 that I noticed the change in the numbness but I haven't made any progress since. The numbness is still just above the ankles. I am still taking it because I feel like it's stopped the progression which my neurologist told me was going to continue. So I just look at it as my new normal and I'm happy with it. You have to take my example with a grain of salt as it's subjective to the my perception of the numbness -- I haven't had any additional EMGs to say YAY! It's better now.

Good luck with whatever you decide.

John

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Replies to "Hi Arnrob, Glad you found the link. I think the price ends up to be 5..."

Thank you. Could not ask for a more comprehensive, transparent and forthright response.
Arnrob