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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Jun 26 1:11pm | Replies (2974)
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@arnrob

Hi John
The post I referred to was to "paulfj67" and was dated September 10. However, I checked the link again and I got to where I wanted to be. I eventually got to the Facebook page for the Neuropathy group. There I found this extensive list of OTC compounds (which I originally saw some months ago in another post from you and which I have been trying to find ever since). I would like to ask a question, if I may? It's been 19 years since my first diagnosis. Since that time I, like many others, have gone through countless procedures and countless more medications by MD's in 3 states. As expected, nothing worked. That is why I was drawn to the protocol on the Facebook page and what was in your email from many months ago. My question is: how much do the items in the protocol list cost assuming I purchased all of them??
Thank you for being an important mainstay for our web site and all of the quite helpful suggestions you have to offer to all of us.
Arnrob

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Replies to "Hi John The post I referred to was to "paulfj67" and was dated September 10. However,..."
John, Volunteer Mentor | @johnbishop | Sep 11, 2018

Hi Arnrob,
Glad you found the link. I think the price ends up to be 5 to 7 dollars a day total because some of the items are more than a monthly supply but ordering everything at once to start is a little less than $200 (I'm guessing). The group is a 501c3 organization and has a website ( http://solutions2pnpd.com/ ) that goes along with the closed Facebook group. There are also options for some of the items that are more bio-available and cost a little more so you can go with the lower cost ones but it normally means more pills (yuck). I would recommend joining the group and then reading all of their research files and new member information before ordering anything.
The group also has a Help Another Member (HAM program) that members donate to and the moderators select people who are having trouble affording the cost of the protocol.

I don't know if it will work for you but it's certainly worth a try if nothing else has helped. I would just like to reiterate that it's important to read through their information and do your own research if you have any questions. The group also has a weekly Facebook live session that new members can ask questions of others. While I don't have pain with my PN and only have the numbness I decided to try it. The numbness was in both legs from the toes to just below the knees. For me, after 2 months of taking the protocol the numbness went from just below the knees to just above the ankles. I really thought it was going to get rid of it. I've been taking it since Oct 2016 and it was Dec 2016 that I noticed the change in the numbness but I haven't made any progress since. The numbness is still just above the ankles. I am still taking it because I feel like it's stopped the progression which my neurologist told me was going to continue. So I just look at it as my new normal and I'm happy with it. You have to take my example with a grain of salt as it's subjective to the my perception of the numbness -- I haven't had any additional EMGs to say YAY! It's better now.

Good luck with whatever you decide.

John

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