Double here too same - found out abdominal lymphodema could be issue with double mastectomy- and that's what it turned out to be so I was referred to OT who is a certified lymphodema specialist. She started with Lymphatic massage and using a pump and man did it make a difference! I purchased my own garment & pump so I could do it daily at home instead of going in twice a week for treatment. In addition I go to a massage therapist who specializes in Lymphatic massage. My OT said Abdominal lymphodema tends to be overlooked by Dr. I'm glad mine listened - after having several tests to rule out other reasons I was referred & so glad I looked into it.