Connect
← Return to Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?
Discussion
Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?
Neuroendocrine Tumors (NETs) | Last Active: Oct 14, 2023 | Replies (31)Comment receiving replies
Definitely keep your follow up. If you feel it’s something you need to be seen for or more serious then ask them to move up the date. Please see a NET specialist. I had one dr strongly feel my NET tumor in the tail of my pancreas was a splenule. I’m glad I listened to my intuition and kept pushing the doctors for more than a best guess. I had a gastroenterologist who also felt it was a NET and not the splenule. She found me a NET specialist with Texas Oncology and I had surgery in May to remove 1/3 of pancreas (NET was in the tail) and my spleen. I’m recovering well and so glad I pushed forward.
My love and prayers are with you 💜💜💜💜
Replies to "Definitely keep your follow up. If you feel it’s something you need to be seen for..."
Connect
Hi Michelle! We did not have any resolution at Mayo last month and are very discouraged. Every time I read more of your experiences and story it sounds so much like my husband’s. They were trying to tell him his could be a splenule as well. Can you give the name of the doctor who finally found you answers we will fly anywhere to get the help he needs. He feels sick everyday and no one seems to want to believe his symptoms and help him! If you would rather just email me my email is tinerobison@comcast.net.