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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)

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@mrsmoscowjones

Oh my, I feel your pain in every word you write. I have gotten to the point at times when I have been bed ridden or must use a wheelchair. I too do not have diabetes. I do have fibromyalgia. But still no one k ows what has caused the peripheral neuropathy. I am not overweight at all. I have had covid twice but had the condition before the covid. The restless legs are unbearable. I scream myself to sleep at times. I too take Lyrica. I am an author and I can pick at the keyboard with one finger. I however unlike you have pain management. I take a little percocet but it helps temporarily. People in chronic pain, I feel, are being undertreated because of the drug crisis with the population on general. It's very unfair. No one is being helped now I believe unless you are dying. Well I do what I can. I am in pain 24/7. I understand why fibromyalgia sufferers choose to end their lives. That's not me. I have an exciting profession with a distinguished publishing house, so I will continue on despite the pain and pray that eventually the medical profession will "wake up" and treat this chronic pain . Take us seriously please doctors!!!!!

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Replies to "Oh my, I feel your pain in every word you write. I have gotten to the..."

Hello @mrsmoscowjones and @casd57, Neuropathy can definitely be a struggle for all of us and a positive attitude and learning as much as you can about the condition and treatments that are available is one of the best things we can do to advocate for ourselves. Believe it or not there are doctors out there that care and are working to change the healthcare system. Check this site out - https://www.patientrevolution.org/tools.

@casd57, You asked if it is worth it to go to a specialist. Not sure anyone can answer that for you. If it were me, and I didn't have a diagnosis, yes, it would be worth seeing a specialist to find out the cause and what treatment options I have including prescriptions and non-prescription options like lifestyle or other changes I can make to improve the condition or reduce the symptoms.

@mrsmoscowjones, It sounds like you have figured out what you need to do to minimize the pain and disruption and are able to continue doing what you love. Do you have any tips or techniques you can share?