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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)

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@vmchow

An MRI found a 1.7 tumor in the trail of my pancreas. My doctor immediately sent me for a fine needle endoscopic biopsy. Pathology confirmed that the tumor expressed chromogranin. Dota petscan confirmed a PNET. Wait and watch for one year.... No change, but i opted for a distal pancreatomy saving the spleen. Two months post surgery, I'm doing pretty well. I'm 65. I wanted the surgery while i was still relatively fit instead of waiting... I'm happy to chat with you about my experience of your like to contact me, but my case was pretty straight forward and I've been lucky so far. I think people need to hear the good stories as well as the challenging ones. 🙏 This cancer can be treated. And you're not alone on the journey.

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Replies to "An MRI found a 1.7 tumor in the trail of my pancreas. My doctor immediately sent..."

My partner a 63 years old had the same one but it was highly suggested by the endocrinologist to remove the spleen as tumour was a little big tho encapsulated and sitting in the tail and he could possibly come back after 2 months to remove spleen. He just came out of recovery going to ICU as we speak. As I heard he is doing well and everything is good. Looking forward to see him soon