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Falling for no apparent reason: Any ideas?
Brain & Nervous System | Last Active: Oct 15 11:16am | Replies (201)Comment receiving replies
When they do the MRI, tell them to look for superficial siderosis. It’s caused by a brain bleed the leaves a thin sheet of blood between areas of the brain. Over time it oxidizes and interrupts signals in the brain. Very rare disease, but I have it and it first appears as imbalance, called ataxia, and steadily gets worse. I was getting by with a cane, It now using a rollater. I’m 77 and falling is now my biggest fear, I do not want to lose mobility. Good luck
Replies to "When they do the MRI, tell them to look for superficial siderosis. It’s caused by a..."
Thank you! I'll be seeing my neurologist for falling problems after a DAT ruled out Parkinsons, and I will ask her about it. I tend to have rare disorders. This might be the answer after all these years. Does superficial siderosis have any treatments?
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BTW, this is often missed in the MRI, because this is hard to detect u less they are looking for it. The radiation tech saw something, the neurologist had not heard about it and had to research. This is often missed in diagnosis’s, but I assure you it exists.