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Gastroparesis with severe symptoms!

Digestive Health | Last Active: 1 day ago | Replies (494)
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@flourface

Hi , I also have Gastroparesis and acid reflux. Bloating, and fullness. I have has 3 endoscopys, pH test, Barium swallow test, Emptying test, Colonoscopy and seen 7 different Gastroenterologists. I have Gone 2 hours away to Tampa General- wouldn’t recommend, as I live in Punta Gorda, Fl and NYC twice and everything normal. I eat spaghetti squash, scrambled eggs and grilled chicken ( no fat) on white toast. Most days I skip dinner, As I am too full. My Gastroenterolgist prescribed taking Miralax 1-3 doses 30 mins apart every 5 days or when needed in order to empty out. On those days I stay near a bathroom. I am now on Xifaxan twice a day for 30 days in case I have Small Intestine Overgrowth bacteria (SIBO). I did the home test annd came back negative, but my doctor didn’t have much faith in the test. Insurance doesn’t always pay. I paid $905 for it. I have been suffering for a year and a half. My next plan is to get surgery for an Enterra Batery operated device put in my stomach to empty out, like a pace maker. Hope something works for you. Feel better!

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Replies to "Hi , I also have Gastroparesis and acid reflux. Bloating, and fullness. I have has 3..."
candidough47 | @candidough47 | Sep 5, 2023

God bless you!!

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peggyjean | @peggyjean | Sep 5, 2023

I also have gastroparesis & really bad GERD….. I had two surgeries for my hiatal hernia of which “I think is my culprit of my gastroparesis” not been confirmed, but…. Not diabetic.
This might sound crazy to some, but here goes & it’s working for me…. I quit eat veggies & fruits along with starchy foods….. I eat red meat, eggs, bacon, fish, & chicken….. I’m lactose intolerant or I would be eating ice cream & cream in my coffee….. (tested at Mayo Clinic) I still enjoy my lemon green tea & limit my caffein & good old H2O. I graze during the day & give my stomach a rest after last meal about 6 pm for about 16hrs. I try very hard not to overeat because I can still get bloated & Walking helps a lot after eating if I do, along with occasional Zofran (an Rx). My PC doctor knows & follows me with labs…. I do take supplements. Hope this might help someone experiencing gastroparesis. My gastroenterologist threw up his hands & said “I don’t know what to do for you!!!! I went to Mayo & had more tests & talked with a dietitian who had pregnant brain…. I knew more than she did…. I know this goes against all our teachings about nutrition & I’m an RN, but it’s working for me…. You tube helped me a lot with high protein low carb eating…. Lots of info on YouTube on carnivore eating….I know some think bad of this….but…..
Prayers For Answers For Us Suffering….

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